Heartbroken Jesy Nelson has revealed she’s been told her twin babies will “never be able to walk”.
The singer became a mum for the first time in May last year when she prematurely welcomed twins after an incredibly difficult pregnancy. Jesy shares her daughters, Ocean Jade and Story Monroe Nelson-Foster, with singer Zion Foster.
But now, Jesy has shared the heartbreaking news that her twins have been diagnosed with the “most severe muscular disease” – with Jesy admitting “my whole life has done a 360”.
Jesy Nelson reveals twins heartbreaking diagnosis
On Sunday (January 4) Jesy shared an Instagram video confirming her twins had been diagnosed with Spinal muscular atrophy (SMA).
She told her followers in the emotional post: “The girls have now been diagnosed with a severe muscle disease called SMA type one. For those of you who don’t know what SMA type one severe muscular disease that a baby can get.
“It’s done for spinal muscular atrophy, which can affect, well, it does affect every muscle in the body, down to legs, arms, breathing, swallowing.
“And essentially, what it does is, over time, it kills the muscle to the body. And if it’s not treated in time, your baby’s life expectancy will not make it past the age of two.”
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Jesy says twins will ‘never be able to walk’
Jesy also shared that she has been told her twins would both be disabled and “never able to walk”.
She said: “When they assessed the girls at Great Ormond Street, we were told that they will never be able to walk and never regain their neck strength. So they will be disabled.”
Looking ahead, Jesy added that her daughters have started treatment. She explained: “And so the best thing we can do right now is to get the treatment. And then just hope for the best.
“So hopefully the girls have had their treatment, which you’re so grateful for. Because if they don’t have it, they will die.”
‘I’m grieving a life I thought I was going to have’
Revealing she’s had to put her daughters on breathing machines, Jesy said: “I feel like I’ve almost had to become a nurse in the space of two weeks.”
“The reason I wanted to make this video was because, the last few months has honestly been the most heartbreaking time of my life. I feel like my whole life has done a 360.
“I’m grieving a life I thought I was going to have with my children.” She then noted how grateful she is to have her beautiful daughters. Jesy added: “I truly believe that my girls will defy all odds.
“And with the right help, they will fight this, and go on to do things that have never been done.”
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